Baby Hope, a jovial five-year-old with a bright smile, is among three children currently admitted to Ward 9 at Jaramogi Oginga Odinga Teaching and Referral Hospital (JOOTRH), awaiting a life-changing neurosurgical procedure during the ongoing Neuro Camp.
Her mother, Ms. Judith Adhiambo, clings to hope as she prays for a successful surgery that will finally bring an end to their daughter’s stressful health journey. “I look forward to a successful surgery ahead for my daughter,” she says, her voice filled with faith.
A month ago, Hope was full of energy, eagerly preparing to join Grade One at a private school. However, everything changed when she suddenly fell ill. It all began with a mere fever but later escalated into persistent vomiting, which puzzled her parents. Alarmed by the symptoms, they rushed her to the nearest hospital, where malaria tests were conducted.
Hope was immediately placed on antimalarial treatment, but to her parents’ dismay, her condition worsened. The vomiting continued, and she grew so weak that walking became a challenge. She frequently lost balance and would collapse after just a few steps. Terrifying convulsions accompanied the vomiting episodes, and Hope began complaining of severe neck pains.
These alarming signs sent Hope’s parents into a desperate search for better medical attention. They sought treatment at Siaya County Referral Hospital, where doctors conducted a CT scan, which revealed a devastating diagnosis that they least expected. It was a growth in her skull that required urgent neurosurgical attention.
The news was a heavy blow to Hope’s parents, but they refused to give up. Determined to find the best care for their daughter, they travelled to Kisumu and visited Obama Children’s Hospital at JOOTRH. Following a thorough examination by a paediatrician, they were referred to Dr. Lee Ogutha, the only Neurosurgeon in Nyanza, who has an extensive experience in handling complex cases like Hope’s.
Dr. Ogutha recommended an MRI scan to gain a clearer understanding of the condition. The results confirmed the initial findings _ a serious growth that urgently required surgical intervention. However, the neurosurgeon informed the family about the upcoming Neuro Camp, organized by Kisumu Neuroscience Initiative in collaboration with JOOTRH, scheduled to run from January 27 to February 5, offering specialized care and hope for patients with brain and spine conditions.
Meanwhile, Hope’s condition continued to affect her daily life. Despite her parents’ hope that she could resume schooling, her health struggles made learning extremely difficult. Two weeks after the school term officially began, Ms. Adhiambo carefully explained Hope’s condition to the teachers, requesting their support as she attempted to reintegrate her daughter into learning activities.
The teachers were understanding and closely monitored Hope, but her condition continued to hinder her progress. She often lost balance, struggled to participate in lessons, and required extra care from those around her. These challenges weighed heavily on her mother, who constantly worried about the toll the illness was taking on her daughter’s education and social development.
Despite these struggles, Ms. Adhiambo remains hopeful. “We’ve gone through a lot, but I believe she will be okay after the surgery.” She shared.
As they await the procedure, Hope’s parents are filled with cautious optimism. They are immensely grateful for the support they’ve received from JOOTRH and the compassionate care of the medical staff. This Neurosurgical camp came at the right time when they needed it. They pray that their daughter recuperates fully to the vibrant life she once had.