By Yoga David
As the world prepares to mark World Parkinson’s Day on April 11, the Parkinson’s Support Group Kenya (PSGK) for the Nyanza and Western Region has called for increased awareness and support for individuals living with Parkinson’s disease. This year’s observance will take place at the Mama Grace Onyango Cultural Centre in Kisumu.
The team leading the awareness efforts includes Irene Obuya, Coordinator of PSGK–Nyanza and Western Region; Professor Francis Ang’awa, Director of JOOUST-Kisumu Campus; Michael Amara, County Occupational Therapist, Department of Health; and Ms. Agneta Opiti, a teacher and Parkinson’s warrior based at AIC Olago Alouch Girls in Kisumu West.
Irene Obuya stressed the importance of strategic partnerships in tackling the challenges faced by individuals with Parkinson’s and their caregivers. She noted that PSGK works closely with neurologists, research institutions such as KEMRI, and organizations like the National Council for Persons with Disabilities to provide comprehensive support services.
She also highlighted the integration of technology in managing the condition, including transport assistance to medical appointments and support group meetings.
“Our mission is to raise awareness and ensure that those living with Parkinson’s feel seen, heard, and supported,” said Obuya.
Michael Amara shed light on the complexities of the disease, describing its impact on movement, balance, and overall motor function. While Parkinson’s is often associated with older adults, Amara noted an increasing number of younger diagnoses, with some patients as young as 25.
He emphasized the importance of early diagnosis and intervention, as the disease progresses through stages—from mild symptoms to more severe impairments including speech difficulties and loss of mobility.
According to Amara, the group currently supports 50 individuals living with Parkinson’s, a significant increase from just five in previous years. He underscored the need for a multidisciplinary approach to care, involving neurologists, physiotherapists, and speech therapists.
“Healthcare professionals need more in-depth training on Parkinson’s disease, especially during medical education,” Amara added.
Professor Francis Ang’awa emphasized the critical role of academia in advancing Parkinson’s research and patient support. He outlined the university’s involvement in supporting research, providing small grants to assist patients with transportation, and collaborating with the Kisumu County Government to raise awareness.
“We are proud to partner with stakeholders committed to improving the lives of people affected by Parkinson’s,” said Prof. Ang’awa. He also dispelled common myths, including beliefs linking the disease to witchcraft, urging communities to seek modern medical solutions.
Ms. Agneta Opiti offered a personal and moving account of her journey living with Parkinson’s. She described how symptoms such as tremors, speech difficulties, and fatigue affect both her work and personal life. Opiti also addressed the stigma and misconceptions surrounding the disease, which often lead to social isolation.
She encouraged those experiencing symptoms to seek medical help early, noting that with proper care, people with Parkinson’s can still live meaningful and productive lives.
The group called for more training on Parkinson’s for healthcare workers to ensure accurate diagnosis and better patient care. They also urged the public to attend the World Parkinson’s Day event, which will be supported by the Kisumu County Government, Parkinson’s Foundation, Aga Khan Hospital Kisumu, KIWASCO, JOOUST, and KEMRI.